Behind closed doors, millions of family members are quietly acting as stand-in clinical care teams.
They aren’t paid doctors or trained nurses. They are spouses, adult children, and neighbors managing complex medication schedules, fighting insurance claim rejections, and translating dense hospital jargon in the middle of the night—all while dealing with the heavy emotional weight of watching a loved one struggle.
We call them informal family caregivers. The modern healthcare system assumes they will seamlessly fill the gaps, yet provides them with no manual, no training, and no emotional life support. The Lily Foundation is stepping into that gap to stop the burnout before it breaks them.
What We Are Accomplishing in Baltimore
The Baltimore Pilot Project is our deliberate, tactical listening post. We aren’t arriving with rigid, top-down lectures. Instead, we are gathering real caregivers, advocates, and local leaders into one room to build a protective infrastructure.
Documenting precisely where insurance networks, discharge processes, and clinical literacy gaps push family members to the brink of exhaustion.
Using direct, qualitative feedback to design plain-language health literacy curricula and caregiver decompression resources that actually work in real life.
Operational Logistics Brief
Flagship Focus Group
An intimate, high-impact interactive session engineered to capture real stories from local Maryland families.
Patterson Park Library
📍 158 N Linwood Ave
Baltimore, MD 21224
Saturday, July 25, 2026
⏰ 1:00 PM – 2:30 PM EST
Choose How You Stand With Us
Whether you need a seat in that room to share your story, or want to follow our data tracking from afar, your presence matters.