The Lily Foundation (“we,” “our,” or “us”) is committed to protecting the privacy and personal information of our website visitors, family caregivers, patients, donors, and volunteers. This Privacy Policy outlines how we collect, use, disclose, and safeguard your information when you visit our website, utilize our embedded intake tools, or engage with our platform.

As a registered 501(c)(3) non-profit organization focused on patient advocacy and medical education, we handle all personal narratives and operational data with the highest levels of structural discretion, confidentiality, and respect.

1. Information We Collect

We collect personal information that you voluntarily provide to us when you interact with our platform. This includes:

• Personal Identifiers: Full name, email address, mailing address, and contact information.
• Demographic & Operational Attributes: Self-identified roles (e.g., family caregiver, patient, community advocate, or donor) selected through our forms.
• Communications & Narratives: Any specific text descriptions, personal health tracking contexts, or requests for help shared within our open text message fields.
• Contribution Data: Transaction histories and operational metrics associated with financial support.

2. How We Use Your Information

We utilize the data gathered through our framework strictly to advance our core advocacy missions, including:

• Processing direct client requests, matching individuals with localized support systems, and scheduling crisis resolution actions.
• Distributing plain-language medical translation toolkits and caregiving resources.
• Managing volunteer applications, operational field training, and community coordination.
• Sending requested operational updates, milestone alerts, or newsletter communications (which you may opt out of at any time).
• Processing securely handled donations and issuing necessary tax-deductible compliance receipts.

3. Absolute Donor Privacy Guarantee

We maintain a strict policy against commercializing or sharing your goodwill. The Lily Foundation will never sell, rent, trade, share, or lease our donor lists or your personal information to any outside organization, commercial entity, or third-party marketing network. Your information is strictly utilized for direct foundation operations and communications.

4. Third-Party Framework Integrations

To keep operations secure and cost-efficient, we leverage reliable third-party infrastructure integrations:

• Website Analytics (Google Analytics): We use Google Analytics to better understand how visitors interact with our website. This collects information such as frequency of visits, pages viewed, and referral sources to help us improve our services. For more information on how Google collects and processes your data, please visit How Google uses information from sites or apps that use our services.
• Intake & Newsletters (Google Workspace): Our connection interfaces and informational sign-ups are managed via Google Forms and integrated Google Sheets. Data access is strictly restricted to authenticated foundation coordinators.
• Financial Donations (Zeffy): Financial contributions are completely processed via Zeffy’s secure, zero-fee fundraising framework. The Lily Foundation does not collect, track, or store credit card numbers or banking credentials on our local website architecture. Your transaction is governed securely by Zeffy’s compliance systems.

5. Cookies & Tracking Technologies

We use cookies and similar tracking technologies to enhance your experience and analyze website traffic. When you first visit our site, a cookie consent banner will appear, allowing you to choose whether to accept or decline non-essential cookies, including those used for Google Analytics.

You have full control over your preferences. You can update or withdraw your consent at any time by clicking on the cookie settings icon or link located at the bottom corner of your screen. For detailed information about the specific cookies we use, please refer to the “Cookie List” within our consent banner interface.

6. Data Security & Retention

We implement administrative, technical, and physical safeguards designed to protect personal narratives and contact lists against unauthorized access, destruction, or exposure. Personal info is kept only as long as necessary to fulfill your specific inquiries or comply with standard IRS non-profit record-keeping guidelines.

7. Contact Our Compliance Team

If you have questions regarding this policy, wish to review your stored data, or want to request the immediate erasure of your records from our databases, please contact our administrative team directly:

The Lily Foundation

Primary Regional Focus: Maryland Communities

Corporate EIN: 39-2563835

Contact Email: info@lilyadvocacy.org